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www.center-hc.ru • Просмотр темы - Дерматомиозит

Дерматомиозит

Системная красная волчанка. Склеродермия. Аутоиммунный тиреоидит. Болезнь Крона. Геморрагический васкулит.

Дерматомиозит

Сообщение Татьяна » Ср ноя 11, 2009 1:20 am

Приветствую Центр!
Мей дочери 11 лет. Два года назад заболела, поставили диагноз "ювенильный дерматомиозит", ЮДМ.
Принимали преднизолон, который оказал кратковременный эффект. Потом наступило резкое ухудшение состояния и врачи перевели нас на метотрексат, внутримышечно.Пишут, что тяжёлое течение, но улучшения от метотрексата есть. Например, в прошлом году мы пользовались инвалидной коляской, а сейчас уже нет. Однако и ремиссии тоже нет, насколько я понимаю.
Кожные проявления васкулитного типа то бледнеют, то снова появляются.
О побочных эффектах МТХ даже страшно думать, но пока ничего не заметно, только живот болит периодически, даже ночью.
И сколько ещё нам принимать МТХ -- неизвестно.
Я много читала о плазмаферезе, а теперь случайно вышла на ваш центр.
Как Вы думаете, поможет ли нам ЭК гемокоррекция?
Заранее благодарю за оптвет.
Татьяна
 
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Re: Дерматомиозит

Сообщение SVMamaev » Чт ноя 25, 2010 2:43 pm

C уважением,
_________________________________________________
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к.м.н., Сергей Васильевич Мамаев
mamaev_sv@center-hc.ru www.center-hc.ru
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